{"id":7081,"date":"2014-08-29T15:59:34","date_gmt":"2014-08-29T15:59:34","guid":{"rendered":"https:\/\/stateofthenation2012.com\/?p=7081"},"modified":"2014-08-29T15:59:56","modified_gmt":"2014-08-29T15:59:56","slug":"ice-bucket-challenge-als-foundation-admits-less-than-27-of-donations-fund-research-cures","status":"publish","type":"post","link":"https:\/\/stateofthenation2012.com\/?p=7081","title":{"rendered":"Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &#038; Cures"},"content":{"rendered":"<h2><strong>Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &amp; Cures<\/strong><\/h2>\n<p>by Anthony Gucciardi<br \/>\nNatural Society<\/p>\n<div>\n<div id=\"nrelate_flyout_placeholder\">\n<p><img loading=\"lazy\" decoding=\"async\" title=\"Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &amp; Cures\" alt=\"als association donation spending 263x164 Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &amp; Cures\" src=\"http:\/\/cdn.naturalsociety.com\/wp-content\/uploads\/als-association-donation-spending-263x164.png\" width=\"263\" height=\"164\" \/>As a huge proponent of serious charitable organizations, it always is disturbing to see trends such as Kony 2012 and various Susan G. Komen for the Cure\u00a0initiatives take the social media atmosphere by storm. From the ultimate backlash against the celebrity-driven Kony fraud to the embarrassment of the KFC \u2018Buckets for the Cure\u2019 campaign backed by Susan G. Komen, I was immediately hoping that the infamous new \u2018ice bucket challenge\u2019 would in fact be an exception to the series of misled social media fundraising campaigns.<!--more--><\/p>\n<p>As soon as the ALS Association published its official numbers and my contacts within the investigative community confirmed the worst, however, it was apparent that once again we have been shoveling (or dumping in this case by the bucket-load) our hard earned funds into an organization that only uses about 27% of its financing to actually fuel research \u2018for the cure\u2019 \u2014 which just so happens to be based on pumping up the bloated pharmaceutical industry.<\/p>\n<p>But don\u2019t just take my word for it.<\/p>\n<h2><strong>$95 Million Later: Only 27% Of Donations Actually Help \u2018Research The Cure\u2019\u00a0<\/strong><\/h2>\n<p>Reaching\u00a0<a href=\"http:\/\/www.alsa.org\/news\/media\/press-releases\/ice-bucket-challenge-082714.html\">over 94 million<\/a>\u00a0in donations at the time of writing this article, thanks primarily due to the viral ice bucket challenge marketing campaign, you may be surprised to see the admitted breakdown of the company\u2019s donated resources. You may be even more surprised to see the income breakdown within this non-profit that prides itself in helping \u2018find the cure\u2019 for ALS \u2014 now the most common among the five motor neuron diseases. From the company\u2019s own records, we\u00a0<a href=\"http:\/\/www.alsa.org\/about-us\/financial-information.html\">find the following cost breakdown<\/a>\u00a0for the year ending in January of 2014:<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" title=\"Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &amp; Cures\" alt=\"als association donations Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &amp; Cures\" src=\"http:\/\/cdn.naturalsociety.com\/wp-content\/uploads\/als-association-donations.jpg\" width=\"355\" height=\"433\" \/><\/p>\n<p>Research, as you can clearly see, sits at only 27% of the organization\u2019s overall expenditures. Fundraising (marketing), stands at around half at 14%, and<strong>\u00a01.9 million in administration<\/strong>\u00a0(7%) was spent on their roster of highly paid non-profit executives. In fact, we even have the salary figures\u00a0for\u00a0each executive, including the ALS Association CEO\u2019s six figure total:<\/p>\n<ul>\n<li><strong>Jane H. Gilbert \u2013 President and CEO \u2013\u00a0$339,475.00<\/strong><\/li>\n<li>Daniel M. Reznikov \u2013 Chief Financial Officer \u2013 $201,260.00<\/li>\n<li>Steve Gibson \u2013 Chief Public Policy Officer \u2013 $182,862.00<\/li>\n<li>Kimberly Maginnis &#8211;\u00a0Chief of Care Services Officer \u2013 $160,646.00<\/li>\n<li>Lance Slaughter &#8211;\u00a0Chief Chapter Relations and Development Officer \u2013 $152,692.00<\/li>\n<li>Michelle Keegan \u2013 Chief Development Officer \u2013 $178,744.00<\/li>\n<li>John Applegate \u2013 Association Finance Officer \u2013 $118.726.00<\/li>\n<li>David Moses \u2013 Director of Planned Giving \u2013 $112,509.00<\/li>\n<li>Carrie Munk \u2013 Chief Communications and Marketing Officer \u2013 $142,875.00<\/li>\n<li>Patrick Wildman \u2013 Director of Public Policy \u2013 $112,358.00<\/li>\n<li>Kathi Kromer \u2013 Director of State Advocacy \u2013 $110,661.00<\/li>\n<\/ul>\n<p>And let\u2019s be clear: I am a huge\u00a0<em>proponent<\/em>\u00a0of prosperity and business expansion. When it comes to private business and commerce, it benefits us all to see growing numbers among a company and its members. This, however, is not the case for a \u2018non-profit\u2019 organization that is based around the concept of \u2018searching for the cure\u2019 and \u2018funding research\u2019 as its primary goal. Especially when this organization is being funded with close to 100 million dollars through a viral social media campaign in which it appears\u00a0<em><strong>no one truly took the time to investigate the very company they are shoveling their assets into<\/strong><\/em>.<\/p>\n<p>But as\u00a0<a href=\"http:\/\/www.greenmedinfo.com\/blog\/60-natural-als-cures-ice-washing-campaign-isnt-funding\" target=\"_blank\">our friend Sayer Ji<\/a>\u00a0of GreenMedInfo points out in his breakdown of the ice bucket phenomenon, even the smaller portions spent on \u2018research\u2019 for ALS are actually going towards pharmaceutical interventions and the pharmaceutical industry at large. There is simply no room to spend even a single percent of the $100 million in an effort to educate you about the reality that numerous studies available through the\u00a0United States National Library of Medicine\u00a0have\u00a0<strong>demonstrated the natural preventative effects of key substances like:<\/strong><\/p>\n<p><strong>Vitamin E:<\/strong>\u00a0Shown by research to exhibit a whopping 50-60% decreased risk of developing ALS\u00a0<a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC2077791\/\">when taken<\/a>\u00a0alongside powerful\u00a0polyunsaturated fatty acids.<\/p>\n<p><strong>Vitamin B12:<\/strong>\u00a0Demonstrated by scientific study to be highly beneficial in the aid and understanding of ALS. In fact,\u00a0<a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmed\/9843082\">PubMed research<\/a>\u00a0specifically reveals the integral usage of vitamin B12 in ALS research:<\/p>\n<blockquote><p><em>\u201cTo develop a symptomatic treatment for amyotrophic lateral sclerosis, we compared the effects of ultrahigh-dose and low-dose (25 and 0.5 mg\/day, intramuscularly, for 14 days) methylcobalamin on averaged compound muscle action potential amplitudes (CMAPs) in a double-blind trial. No significant changes in CMAP amplitude were found in 12 patients who had the low-dose treatment at either 2 or 4 weeks after start of treatment. By contrast, 12 patients assigned to the ultrahigh-dose group demonstrated a significant increase at 4 weeks. This method may provide a clinically useful measure to improve or retard muscle wasting, if a larger extended trial fulfills its promise.\u201d<\/em><\/p><\/blockquote>\n<p>And the list goes on. But what\u2019s even more important to consider is the lack of information\u00a0<strong>regarding the actual cause of ALS<\/strong>, which may be even more valuable to many sufferers. Looking to the research we find an extensive list of culprits that can be identified and reduced, including:<\/p>\n<p><strong>Pesticides:<\/strong>\u00a0Not mentioned by the ALS Association, a number of studies\u00a0<a href=\"http:\/\/www.greenmedinfo.com\/greenmed\/topic\/18921\/focus\/36688\/page\">have drawn<\/a>\u00a0links between ALS and pesticide exposure.<\/p>\n<p><strong>Lead:<\/strong>\u00a0Often contaminating the food supply and foreign products, 4 studies have demonstrated a relationship\u00a0<a href=\"http:\/\/www.greenmedinfo.com\/greenmed\/topic\/18921\/focus\/21988\/page\">between lead<\/a>\u00a0and ALS at large.<\/p>\n<p><strong>Statin Drugs:<\/strong>\u00a0You may already be well aware of the dangers surrounding statin drugs, in which case this may not surprise you. ALS has been\u00a0<a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmed\/19591530\">identified as a<\/a>\u00a0possible side effect of these drugs that aim to reduce cholesterol.<\/p>\n<h2>The Bottom Line: Spread Information, Give to Trusted Charities<\/h2>\n<p>Amid all of the social media madness when it comes to charitable organizations like Susan G. Komen and now the ALS Association, it remains true that the key element necessary for real change is the spread of information. And when financial abilities allow for it, supporting real charities with a proven track record of directly supporting its stated goals with the bulk of its financial power.<\/p>\n<p>As a major believer in supporting real charities, I always am searching for real organizations that follow these principals. Earlier this year, I found out about a Washington native named Ben Charles whose charity had been shut down by beauracratic government officials \u2014 even going as far as to threaten Ben with arrest for feeding the homeless on the streets of Olympia. Concerned about this issue, I further reached out to Ben back in early December\u00a0of 2013, documenting the\u00a0<a href=\"http:\/\/naturalsociety.com\/video-government-criminalizes-church-groups-feeding-homeless\/\">government crackdown on his initiatives<\/a>\u00a0and others.<\/p>\n<p>Later that month, I gave another church that was targeted by the government for handing out turkeys on Thanksgiving a $1,000 donation in order to purchase additional food items (specifically turkey) and distribute it among those who needed it in the area \u2014 a proverbial middle finger to the bureaucratic\u00a0park rangers and officers who sought to shut them down. This was also done as an initiative to drive others to do the same.<\/p>\n<p>Now, amid yet another social media donation campaign that has led to almost 100 million going \u2018towards the cure\u2019, I am inspired (and want to inspire others) to give to a charity that really gives directly to the people it seeks to serve.\u00a0<strong>That\u2019s why I am giving $2,000 to Ben Charles and his grassroots \u2018Crazy Faith\u2019 food program in Olympia, Washington in order to help feed hundreds of homeless individuals on the streets with healthful food items<\/strong>.<\/p>\n<p>With this donation, 100% is to be used in order to purchase high quality foods to feed those in need \u2014 and educate them on how to better their lifestyle with wholesome foods.<\/p>\n<p>Whether or not you have the funds available to support your local communities, what\u2019s even more important is the spread of information.\u00a0<strong>If everyone donating to the ALS Association actually took the time to share key articles such as those highlighting the dangers of ALS-linked toxic substances, or those discussing the power of natural alternatives to ALS treatment, millions would be helped within hours<\/strong>.<\/p>\n<p>No matter what the next social media fad becomes, always remember that it is your voice that propels change and life-saving differences.<\/p>\n<\/div>\n<\/div>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Ice Bucket Challenge: ALS Foundation Admits Less Than 27% Of Donations Fund Research &amp; Cures by Anthony Gucciardi Natural Society As a huge proponent of serious charitable organizations, it always is disturbing to see trends such as Kony 2012 and &hellip; <a href=\"https:\/\/stateofthenation2012.com\/?p=7081\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-7081","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=\/wp\/v2\/posts\/7081","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=7081"}],"version-history":[{"count":0,"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=\/wp\/v2\/posts\/7081\/revisions"}],"wp:attachment":[{"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=7081"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=7081"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/stateofthenation2012.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=7081"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}